During the day, the head of the health portfolio, Luis Medina Ruizattended the facilities in order to be present at the third day of Rare Diseases.
Medina Ruiz explained that these diseases generate difficulties in their diagnosis and then also throughout the patient’s life. “We have very good health teams in Tucumán, with highly trained professionals, with empathy and commitment that they demonstrate with these activities.”
“We have just witnessed a virtual meeting with the Director of Research of the Nation and we have the presence of the doctor specializing in congenital errors Maria Cruz Tubio, featured at Garraham Hospital. In addition to our colleagues who have a high level,” commented the official while thanking the director and deputy director of the Children’s Hospital and all the professionals who are on this path of training and qualification.
On the occasion, the minister stressed that the idea is that the patient, who has a rare disease, has his diagnosis and treatment quickly, in addition to all the containment of the State so that his life is not so difficult. “By order of the governor, accountant Osvaldo Jaldo, which asks us to be close to people and the most vulnerable and these patients are. “We have an organization that allows these people to have access to a timely diagnosis,” she concluded.
Meanwhile, the director of the hospital, Inés Gramajo, He stressed that these diseases are no longer so rare, but rather that they were not diagnosed and highlighted that this is a great step in public health. “We have a multidisciplinary team that works a lot with foundations, such as La Piel de Cristal, finding patients with vulnerabilities and what we do is help them reach a diagnosis and a quick solution.”
The professional said that they operated on several kids from the Piel de Cristal Foundation and that they also work together with Hortensia Juarez, director of the Disability Board. “That is, it is an articulated work where the child arrives, is detected and is helped to solve his health problem along with a disability certificate so that he can manage himself,” she explained.
