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After his public reappearance at the last Grammy Awards, Celine Dion She began to be more open about how she is going through her battle against rigid person syndrome and how she experiences being away from the stage. This Thursday, Prime Video presented a preview of the documentary I’m Celine Dionin which the singer is vulnerable when talking about how her most recent years passed.
In one section of the trailer, the Canadian performer is seen breaking down in tears when remembering the moment in which she had to leave the stage to dedicate herself fully to her treatment. “I’m working hard every day, but I have to admit it’s been a struggle,” the singer explains. “I miss him so much! I miss my audience so much!” she is heard saying, as tears begin to fall down her face.
In any case, Dion makes it clear that the war is not lost and that she is determined to give live concerts again. “If I can’t run, I will walk. If I can’t walk, I’ll crawl. I’m not going to stop. I will not stop“says the “My Heart Will Go On” singer.
In the documentary, Dion, who was just 13 when she released her first album, also discusses her long and successful career, adding: “I’ve seen my life and I love every part of it.” The “Power of Love” singer points out, however, that while she “sounds great” recording music in a studio, it is “better” when she sings a song in front of her fans. “It’s in those moments that I feel like I’m able to create my own magic,” she explains. “It’s not difficult to put on a show, you know? The difficult thing is to cancel it”, he points out.
Her health problems began to become public knowledge when the artist was forced to postpone her tours and residency in Las Vegas in 2021 and 2022 due to her difficulties. After undergoing numerous examinations, in December 2022, Dion revealed that she had been diagnosed with stiff person syndrome, a rare neurological disorder that causes muscle stiffness and painful muscle spasms.. Her illness forced her to also cancel the dates of her tour in Europe, which was due to begin in February 2023.
“The only thing I know is to sing. “It’s what I’ve done my whole life and it’s what I like to do the most,” she explained in the heartfelt video she shared on his Instagram account in which he publicly announced his diagnosis.
When the singer took a step aside to take care of her health, her sister Claudette Dion assumed the role of improvised spokesperson and provided some details of the problems that afflicted the music diva. Among the details she gave at the time, she explained that they had not yet been able to find medications to help alleviate the symptoms and that Celine had supposedly lost control of her muscles.
However, the “I’m Alive” singer made a notable return to the public’s attention at the 2024 Grammys in February, taking the stage unassisted and showing that she’s still putting her teeth into her treatment. “When I say I’m happy to be here, I say it from the heart,” she said at that moment, while everyone present in the auditorium gave her a standing ovation. And she added: “Those who have been lucky enough to be here at the Grammy Awards should never take for granted the tremendous love and joy that music brings to our lives and to people around the world.”
In April, in an interview published by French Vogue, Dion provided some details about how the disease changed her life: “I’m fine, but it’s a big job. I take things day by day. I did not beat this disease, it is inside me and it always will be. I hope we can find a miracle, a way to cure it through scientific research, but for now I must learn to live with it. So this is me, now with Stiff Person Syndrome.”
Later, the artist referred to the treatments she carries out, with the aim of counteracting the progress of the painting. “Five days a week I do physical, athletic and vocal therapy. I work on my toes, my knees, my calves, my fingers, my singing, my voice. I have to learn to live with this and stop questioning myself. Because when this situation started, I asked myself, why me? How did this happen? What did I do? “Is it my fault?” she explained.
THE NATION
