have been formed
Celine Dion He has had to learn a lot about stiff person syndrome, a chronic illness that he has suffered from for two years. Their children Eddy and Nelson They have also been instructed in this regard with original techniques such as crisis drills.
Stiff person syndrome, the chronic illness suffered by Celine Dionhas forced the singer to temporarily withdraw from the stage due to the spasms she suffers.
The 56-year-old artist noted that feels “as if she were being strangled”. “As if someone were pushing your larynx and pharynx, I’m talking, but I can’t raise my voice any more or reduce the flow,” she said. In addition, SPR affects the abdomen, spine and ribs: “They are cramps, but it is as if you were in a position where you cannot unblock them.” “In a moment I broke my ribsbecause sometimes, when it is very serious…”, he reflected.
However, those who are experiencing this disease first-hand are his three children. René Charles (23), Eddie and Nelson (13), the result of her marriage to René Angélil, who died in 2016 while suffering from throat cancer. In an interview with Peopleexplained how he had given them the news about the SPR.
When the spasms became frequent and I could barely walk, she preferred to be the one to tell them the news: “At one point I could barely walk and I missed living a lot and they began to realize.” “I was like, ‘Okay, They already lost one of their parents. “I don’t want them to be scared.”
Eddie and Nelson, always aware of Céline Dion
In a new preview of this conversation, the interpreter of My heart will go on has detailed the intensive training they had what to go through to be informed about the syndrome, especially twins. “We started talking to them about what’s happening,” she said.
One of the most dangerous symptoms are crisis episodes, where the body becomes rigid like a board: “They saw a crisis: we explained it, we reproduced it frame by frame. When I make a sound, or when I don’t make a sound, and what can they do because they’re 13,” she says. “They can help me even if I don’t communicate verbally because I can’t make any sounds.”
And every two or three months, they organize a fake episode of this crisis so that they know how to act, as well as panic buttons throughout the house: “The idea of telling them and showing them was not to scare them. It’s so they know: ‘I’m your mom and it’s my responsibility. You’re old enough to understand that I might need your help.'”
“They’re so amazing because I would say every night, about 15 minutes, they come and say, ‘It’s just because It’s been a little longer than you normally take when you clean yourself at night before going to bed. We just want to make sure you’re okay,'” they ask.
