Although he made an emotional appearance at the Grammy Awards earlier this year, Celine Dion He has not been able to go on stage to sing his greatest hits for several years.
The Canadian star has been forced to postpone the shows of her tour on several occasions Couragedue to a strange neurological disease that she suffers from and that has led her to prioritize her treatment.
In December 2022, she shared for the first time that she had been diagnosed with Rigid Person Syndrome (RPS). It is a rare condition that affects the nervous system and causes stiffness, muscle spasms and increased sensitivity to external stimuli.
Since then he has rarely referred to his state of health. And now, in an interview that he gave to journalist Hoda Kotb for NBCthe singer provided new details about how this has impacted her life and how long she has been battling MRS symptoms.
In the dialogue with NBCthe singer expressed that when she tries to sing she feels as if someone else is pressing hard on her neck, due to the neurological disorder she suffers from.
“It’s like someone is strangling you… It’s like someone is pushing on your larynx/pharynx like this,” Dion related. Next, the artist tried to show what she felt: “It’s like talking like that and you can’t lower or raise (the tone). A spasm occurs.”
Another of the revelations she left in the interview was that, although the artist shared her diagnosis in 2022, in reality has been secretly battling signs of the disease for 17 years. One of the factors that influenced her hiding it was that her husband and father of her children, René Angélil, was also battling an illness, in her case throat cancer.
“I had to raise my children, I had to hide. I had to try to be a hero, while I felt like my body was abandoning me. (I was) clinging to my own dreams,” commented the artist.
The muscle spasms he suffers have been so repeated and strong that, on occasions, they have caused fractures in his ribs. As time goes by, your arms and legs may also become so stiff that it will be very difficult for you to move.
Despite the consequences that the SPR has left on her life, the artist of The Power of Love reveals that he does not plan to make his final retirement. “(This illness) didn’t take anything away from me. I’m going back to the stage, even if I have to crawl. Even if I have to speak with my hands, I will do it”.
“I am Céline Dion, because today my voice will be heard for the first time, not just because I have to or because I need to. It’s because I love it and I miss it,” she argued.
The winner of five Grammys and an Oscar is awaiting the release of I Am: Celine Diona documentary that explores her career as a singer and the struggle with her neurological disorder, and which will be released on June 25 on the Amazon Prime Video platform.
