Singer Céline Dion revealed in the year 2022 that he was diagnosed with stiff person syndrome, a neurological disease that has no cure, which causes the extremities of his body to stiffen involuntarily.
Because of the above, Céline decided to pause her concert residency in Las Vegas, United States, in order to focus 100% on her therapies, which, although they will not eradicate the disease from her body, do improve her quality of life somewhat.
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“Not having control of yourself”
In the middle of her therapies, the singer recorded a documentary for the streaming platform, Prime Video, called “I am Celine Dion”in which he shows his most vulnerable side in the face of the disease, without censoring some of the strongest crises he experiences due to the illness.
In fact, one of the most shocking scenes corresponds to a seizure she suffers after a recording session, while being treated by her sports medicine therapist, Terrill Lobo, who described why Céline wanted to be this vulnerable.
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“It was very disturbing. Very upsetting. I know it’s hard for some viewers, it was hard for me too. But I will tell you that Celine felt validated by seeing herself like that, and she thought it would help her if other people could understand what it’s like,” she said.
In one of the recordings, the Canadian explained in her own words what it is like to live with her illness.“I don’t know how to express it, it’s like… You know? Not having control of yourself,” He said, adding that he had felt symptoms of the disease for at least two decades, but attributed it to other ailments at the time.
Despite the rawness of her story and the images, Céline does not appear to be a person who has been overcome by the disease. In fact, the singer records the process of how she performed the song for the film “Love Again”, adapted to her new reality.
In the documentary, she defines her present as that of an apple tree, which was previously capable of bearing the best fruits with its firm branches. However, today the branches sometimes begin to fall, to twist, and those branches begin to produce a little less apples”, but in no case has it ceased to bear fruit.
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