What happened?
Camila Gómez, the mother of Tomás Ross, who managed to raise more than $3.5 billion to pay for the treatment against Duchenne muscular dystrophy that her son suffers from, announced that they are waiting for the date to be able to make the trip to the United States.
The 5-year-old boy needs to receive the drug Elevidys, a drug that would improve his quality of life, and which will be given to him at the Arkansas Children’s Hospital in the United States.
All about the Thomas Campaign against Duchenne
Last week, in conversation with Meganoticias, Camila explained that she was carrying out a series of procedures necessary to make the trip, which, according to her estimates, should take place this June.
Regarding the treatment, he explained that “it is an injection for the only time in your life, it is a serum that they apply and then you go home, but you have to spend three months in constant and periodic controls in the United States.”
THE LAST
“We are waiting for them to give us the date”
This Wednesday Camila used the social networks of the Tomás Contra Duchenne campaign to share a video of her son in which he thanked the firefighters for the support.
In said publication, she showed a flag that had all the signatures of the Fire Departments that accompanied her on her walk from Ancud, in Chiloé, to the Palacio de La Moneda, in Santiago.
With the money collected, and back in Ancud, Camila pointed out, in the same post, that ““Now we are waiting for them to give us the date of administration of the medication to travel”.
While the travel date is being finalized, Tomás Ross’s mother said that they will take advantage of spending this time as a family.
“In the meantime we will take advantage of resting and recovering family time”ended the publication.
