The singer talks about her life, since her career was put on hold in 2022 due to a rare autoimmune disease: rigid person syndrome (SPR).
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Céline Dion has been updated on her fight against disease autoimmune disease that has paralyzed her career and kept her away from the stage for four years. In the fall of 2022 she was diagnosed with a rare neurological disease known as Rigid Person Syndrome (RPS). Today, the 56-year-old singer claims that she is back.
In a long interview with Vogue France magazine, he describes his relentless struggle daily against the SPR. The disease “is still with me and always will be. I have to learn to live with it,” he emphasizes.
The Canadian singer shares the despair experienced in the early stages of this extremely rare autoimmune neurological disorder, which affects around 8,000 people worldwide.
“At first I was wondering:because I? How did this happen? I’ve done? “Is it my fault?” says the artist. “Life doesn’t give you answers. You just have to live it. I have this disease for some unknown reason. The way I see it, I have two options: I train like an athlete and work very hard, or I disconnect and it’s over, I stay home, listen to my songs, stand in front of the mirror and sing to myself. I have chosen to work with my whole body and soul, from head to toe, with a team doctor. I want to be the best possible. My goal is to see the Eiffel Tower again. I have that strength and that motivation inside me. I know nothing is going to stop me,” she explains.
Céline Dion, who reappeared in public on February 4, 2024 at the last Grammy Awards ceremony, where she presented Taylor Swift with the award for Album of the Year, describes the “therapy sports, physical and vocal” to which he undergoes five days a week.
Often misdiagnosed as Parkinson’s disease, multiple sclerosis, fibromyalgia or anxiety, RPS is a rare neurological condition that causes muscle stiffness and pain. spasms. According to the National Institute of Neurological Disorders and Stroke, it is characterized by “abnormal postures, often hunched and rigid” and affects women more than men.
It has no known cure, but it can be treated with anxiolyticsmuscle relaxants, anticonvulsants, pain relievers, and immunoglobulin therapy, which can help reduce stiffness and decrease sensitivity to noise, touch, and other stressors.
Dion took a trip down memory lane and described the influence by the French singer-songwriter Jean-Jacques Goldman, who was decisive in making his way in France. “He taught me to leave space for the music and the lyrics. You can’t sing in French with English words, or in English with French words. So, he taught me to let the words rely on the music to be able to imagine the story,” he says.
“Singing in English involves a lot of embellishment, it has everything to impress and I love that,” he adds. “Singing in French demands a lot from you, because you want to be more subtle. “Sobriety is hard,” she explains.
When asked if she will return to the stage and tour, the singer is cautious. “I can’t answer that, because I’ve been telling myself for four years that I will not come backthat I am prepared, that I am not prepared…”, she affirms.
“Today, I can’t tell you: ‘Yes, in four months’. It’s just… I don’t know. My body will tell me,” he concludes.
