Celine Dion She assures that her “passion as an artist will never disappear” despite her health problems, which are, according to her, only a small part of her monumental story.
“I’m not dead,” the singer declared to the AFP on the red carpet on Monday, before the premiere of the heartbreaking but also joyful documentary I Am: Celine Dion.
The film focuses on his brilliant career and the most recent problems derived from a rare neurological disease that has forced him to retire from the stage.
For the Canadian artist, the decision to talk about her illness in the documentary film is both “the greatest gift and the greatest responsibility” and hopes to serve as an inspiration to people in similar situations.
“It’s hard to be here,” she admitted to the press, although “at the same time, I’m very moved,” she said in her native French.
“I feel like I still have a lot of support and a lot of love and I hope this documentary helps, because it helped me a lot,” he said, detailing his gratitude to his family, his medical team and his fans in this “eternal” and daily fight.
“Authentic”
The 56-year-old artist – known among other successes for My Heart Will Go Onfrom the soundtrack of Titanic-revealed in December 2022 that he had been diagnosed with stiff person syndrome (SPR), a progressive autoimmune disorder that has no cure, and which forced him to cancel his performances indefinitely.
Treatment helps relieve the symptoms of this disease, which can cause muscle stiffness in the torso, arms and legs and severe spasms that can cause your voice to crack uncontrollably.
Irene Taylor, the film’s director, told the AFP that the only request of Celine Dion It had been being able to tell his own story, in his own words.
“It was like music to my storyteller ears,” Taylor said. “She opened up and was very authentic,” both “in her joy and in her suffering,” said the director. (AFP)
